Frequently Asked Questions Regarding Sickle Cell Trait

Received date: February 01, ; Accepted date: February 07, ; Published date: February 14, This is an open-access article distributed under the terms of the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original author and source are credited. A total of patients were included in the study- 65 girls and 61 boys. The most represented age group was that from years of age. All of the subjects were homozygous for hemoglobin SS. Subjects with yearly frequency of three vaso-occlusive crises represented Up to

‘I Was Ready To Die Just To Be A Mum.’ The Hidden Heartbreak Of Sickle Cell Disease

Melody David: Sarah Mulenga’s death was a needless tragedy. Emergency staff must treat people who have sickle cell anaemia with respect. A mobile phone database for dairy farmers and a strain of sweet potato that can help fight child blindness. These are just two of the imaginative new ideas that are tackling Africa’s old problems.

May 25, – Explore SickleCellMN’s board “Sickle Cell Graphics, Memes Sickle Cell Anemia, Memes, Quotes, Instagram Posts, Graphics, Qoutes, Dating.

But in Nigeria, the first date conversation is more likely to be about your DNA than if you watch ‘Grey’s Anatomy’ or where you like to vacation. Chat with us in Facebook Messenger. Find out what’s happening in the world as it unfolds. More Videos Graphic by Abdulwahab Oshomah Abubakar Many people don’t want to waste time dating someone who carries the genes that cause sickle cell disease SCD.

The likelihood of this happening is very high in Nigeria, which has one of the highest incidences of the lifelong disease in the world. Communications specialist Damilola Ogunnupebi recently got married in Ogun State, southwest of Nigeria but paramount in her dating journey was the search for a partner with the right genotype. All my dates had the ‘what is your genotype? A genotype is the set of genes in a person’s DNA responsible for a particular trait, and genotypes are considered important in Nigerian relationships because they determine who sickle cell disease carriers are.

Dating someone with sicle cell – Sickle cell anemia

You can take many steps to stay as healthy as possibly with sickle cell disease. One of the most important steps is to work closely with your care team. Print this checklist, and talk with your team about each recommendation on the list.

Damian Jackson has had sickle-cell disease his entire life. How did you approach talking about SCD with your wife, when you were dating?

In September , Lametra Scott gave birth to a baby boy. She named him Rickey. Before his birth, Lametra had no idea that she carried the sickle cell trait SCT. The doctor provided her the option to speak with a genetic counselor to determine possible next steps for her pregnancy. Because of her strong faith, Lametra chose to continue the pregnancy.

When Rickey was born, his primary care doctor tested him for SCD and Lametra was comforted to learn that her son did not have the disease. She was told that he carried the trait for SCD just like his parents. However, this comforting feeling did not last long, as the State of Tennessee Department of Health soon contacted her and requested that she take Rickey in for confirmatory testing. The test was repeated, and the results showed that Ricky did in fact have SCD.

As you can imagine, this news was a devastating blow to the family. Her hematologist a blood disorders specialist , Dr. Michael DeBaun, and his nurse, Jeannie Byrd, were an incredible source of information, giving Lametra a handbook for new patients that was very helpful. There was also a sickle cell support organization in the city, but there was not an organization with an initiative that focused on SCD education.

She wanted to be a source of information and support for people who were going through the same things as she was and also help educate others about SCD.

Sickle Cell Disease

Back to Home. This fact sheet has general information about sickle cell disease SCD. Every child is different and some of this information may not apply to your child specifically. Certain treatments may be recommended for some children but not others.

Although youngsters with sickle cell disease may participate in sports for fun, they are All players should be up to date on all vaccinations, especially HBV.

Ibrahim M. Idris, Akib Abba, Jamil A. Galadanci, Sharfuddeen A. Burnett, Michael R. DeBaun; Men with sickle cell disease experience greater sexual dysfunction when compared with men without sickle cell disease. Blood Adv ; 4 14 : — Priapism is a common morbidity of sickle cell disease that is often undisclosed to care providers and hence is mostly unrecognized.

The prevalence of erectile dysfunction is 2. Recurrent ischemic priapism is a common complication of sickle cell disease SCD. We assessed the burden, characteristics, and types of priapism, including sexual dysfunction, in a cohort of men with and those without SCD, to test the hypothesis that sexual dysfunction is more prevalent in men with SCD.

New Hope for a Sickle Cell Cure

Mary Adeturinmo is a year-old University graduate who studied Architecture. She also has Sickle Cell Disease. Due to health challenges, she has spent a lot of time in recovery as well as promoting and raising awareness for Sickle Cell Disease. She is part of the B Positive Choir which raises awareness about the importance of blood donations as well as Sickle Cell Disease. Mary also has a YouTube channel where she speaks on different issues she faces with this genetically inherited condition.

She also has Sickle Cell Disease. Due to health challenges, Social Media @ Knowing your carrier status and dating with Sickle Cell Disease @

James B. Herrick with complaints of pain episodes, and symptoms of anemia. Ernest Irons to the case. When Herrick saw this in the chart, he became interested because he saw that this might be a new, unknown, disease. As more cases began to surface, the mystery of just what this disease was only deepened. It was clear that for whatever reason, it occurred only or primarily in persons of African origin.

RESEARCH PAGE

March 17, If you or your family member has sickle cell disease SCD , you may be worried about what this new disease may mean to you. The more you learn about COVID, the better you can understand what to look for, how to protect yourself or your loved one, and what to do IF you feel sick. In light of this, the risks to our community may change in the coming days, weeks and months.

It is critical that you stay regularly informed.

No information is available for this page.

December 2, When Mr. Jones married and left their homes in South Carolina for New York, they did not know that they each carried with them a gene for a blood disorder known as sickle cell disease. Two of their six children—Louis and Mildred—each received two copies of the defective hemoglobin gene, one from their father and one from their mother, which meant they both had sickle cell disease. But neither parent knew it.

Louis and Mildred could not move and play like their four siblings or the other children in their Queens neighborhood. They tired easily, due to their persistent, but unexplained, anemia. Pain with no apparent cause plagued them and nothing eased it. In , when he was 5, Louis was hospitalized with a high fever, indicating a severe infection. The pain was so intense he could hardly speak. His parents and his doctors did not know what was wrong.

Sickle cell disease causes excruciating pain episodes, medically known as vaso occlusive crises, and damages organs, often leading to liver, heart, or kidney failure. Louis Jones was 12 years old and his sister Mildred was 13 when they were finally diagnosed with the genetic disorder. Mildred would spend 17 years of her life on dialysis due to sickle cell disease.

Harvard geneticist developing DNA-based dating app to eliminate genetic disorders

George Church, a Harvard geneticist renowned for his work on reversing aging, is creating an app that could eliminate human disease for good by matching potential partners based on their DNA compatibility. The app will pair people who have the least amount of risk of creating offspring with illnesses or disabilities. During a recent 60 Minutes broadcast , correspondent Scott Pelley peppered Church with questions about his lab at Harvard, where he and about researchers are attempting to grow whole organs from Church’s own cells.

The goal, as the geneticist sees it, is to grow organs that will no longer pose a threat of rejection. This process of gene editing—or changing cells from their original state back into the unspecified stem cells you may see in a fetal tissue that have not yet become a specific organ—is relatively safe territory compared to some of Church’s other ideas, like encouraging selective breeding through a dating app.

What’s New. Chhattisgarh Sickle Cell Institute, Raipur a dedicated Centre for treatment, research and counseling and training for sickle cell disease.

This is a report on external research. It is not endorsed by the Sickle Cell Society and does not form part of our Information Standard-accredited information. Human sexuality is an integral part of our existence, a vital aspect of humanity and an important determinant of health status. Aside from reproduction, sexual behaviour serves other important functions such as fostering intimacy and as a source of pleasure.

The complex interplay of physiological and psychological processes that make up sexuality can be affected by the presence of chronic disease. A review of the medical and research literature highlights several negative effects of Sickle Cell Disease SCD on sexual development and function in men such as delayed sexual maturation, sex hormone disturbances, priapism persistent painful erection usually requiring medical attention , erection problems and reduced fertility. At present there is no information available for sufferers or others with an interest in SCD on this aspect of the disease other than the limited information to be found in medical texts which does not reach a lay audience.

The sample consisted of five Afro-Caribbean men with an average age of 27, all with a diagnosis of Sickle Cell Anaemia. One participant discovered that he was subfertile whilst planning a family. This was not an issue for other participants as they were not yet concerned with having a family. The impact of the disease often leads men to feel that they had very little control over their bodies and that during crises they became dependent on others.

This may raise issues in terms of self-image, male role expectations and masculinity. Participants discussed the difficulties of whether, how and when to tell partners about their condition.

​Adult Sickle Cell Disease

When Damian Jackson was a young man, some lawyers helped his family out. I thought it would be a good thing to go into if I could. Damian Jackson has had sickle-cell disease his entire life.

If your child has a different type of sickle cell disease such as work with your regular pediatrician to ensure up-to-date treatment for your child.

Over half of these children die before the age of five. With over , babies born with the sickle cell disease every year, Nigeria has the highest burden of Sickle cell disorders in the world. This year, we explore 6 facts you need to know about Sickle Cell Disease. Although sickle cell can affect people all around the world, the risk is higher in Africans or people of African descent. People who have the sickle cell disease may develop various complications such as anaemia, stroke, tissue, organ and bone damage as well as pain due to the inability of the sickle-shaped red blood cells to carry oxygen normally and to cause blockage of blood vessels.

They can however pass it on to their children. There is no cure for SCD yet. Although, some success has been recorded with bone marrow transplants. A person with SCD can live a long and active life as long as they undergo regular check-ups with a doctor, take their medications regularly, prevent infections through hygienic practices such as handwashing and drink lots of water. SMART is designed to diagnose, track and monitor sickle cell disease and malaria in low resource settings.

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